Recently diagnosed with MEN1. Initial hormone testing indicates likely issues with parathyroid and pancreas. Imaging begins next week. It’s a lot to take in and most of what I read doesn’t tell me much of what I’m trying to hear. Looking for support and information from others with this condition as you all would likely be a better source than cryptic medical studies on the internet.
Ken Peterson says
Recently diagnosed with MEN1. Initial hormone testing indicates likely issues with parathyroid and pancreas. Imaging begins next week. It’s a lot to take in and most of what I read doesn’t tell me much of what I’m trying to hear. Looking for support and information from others with this condition as you all would likely be a better source than cryptic medical studies on the internet.